Subarachniod cyst t-4/5 and poss tethering !

[wiggystephanie]

hiya - hopefully this will become a place that i  fit, in short (ish) heres my story

In 2005 before i got pregannat i was fit as a fiddle ! but i suffered sever spd and started having mobility issues - i was told several times it would tale up to 6 months to get back to normal and this didnt happen. it caused sooo much pain and my mobility was non existant due to pain and my pelvis being soo loose.


I had surgery in 2007 to fix the pelvis, fixated at the front! it was a very long and pain full recovery in that i had to learn to walk again (in my way). during physio it was discovered that i have v slow reflexes in my legs right leg worse and weakness again worse in right side.

eventually they did an MRI (to shut me up) and they found a "kink" in my spinal cord at t-4-5 i went on to have myelograms and all sorts and they decided they only way to 100% sure whats going on was to go in an explore but as they assume the cyst is attached with some tethering they didn't want to disturb it.

so the symptoms i have are,

Severe back pain,
loose joints lower back (they clunk move and get stuck)
Weakness in both legs worse in right
back muscle often spasm and it goies up into my neck and cause headaches that wipe me out for days
bladder issues (rarely get sensation to go, just get belly ache is i have forgotten, self cath as cant fully empty)
numbness in feet - right leg  up to knee (not all time)
and sensation issues in legs all the way up both

occasionally have had saddle numbness (docs panic when that happens)

well thats me ish....


oh and i have the worlds worst memory so as i get to know people on here please dont take offence should i forget things quickly its not personal


ttfn stephanie